South Wales and South West England Nurse Neurodevelopmental Disorders Forum

Tuesday 12 September 2023 09:00 - 15:50
Join us for this South Wales and South West England Nurse Neurodevelopmental Disorders event taking place at the Old Church Farm, Bristol with our guest speakers Victoria Bates, Kirk Anderson, Joanna Kippax, Louise Bull-Tyagi, Michael Jenkins and Mary Trotman. They will help you to understand the benefits of psychoeducation for children with autism whilst highlighting the challenges of managing sleep in children with ASD and provide management strategies to improve outcomes.
An account is required to register for this event.

Agenda

09:00
Coffee and registration
09:30
Welcome and introduction, Victoria Bates, Clinical Lead for Specialist Nursing, Community Childrens Health Partnership Sirona Care and Health Bristol
09:35
Autism psychoeducation session, Kirk Anderson, Deputy Team Manager & Children’s Community Learning Disability Nurse, Swindon Community CAMHS
10:35
Coffee break
11:00
What we need for sleep to arrive and why sometimes it runs a mile! Joanna Kippax, Sleep Practitioner and Nurse Prescriber, WyeSleep, Hereford
12:00
Diagnosis and management of insomnia in paediatric patients with ASD, Louise Bull-Tyagi, Lead Nurse for Learning Disability and DICE / NMP lead for FTB, Birmingham Women’s and Children’s NHS Foundation Trust
13:00
Lunch
13:45
Equipping the expert patient: ADHD domain tool, Michael Jenkins, NMP Advanced Nurse Practitioner Forward Thinking Birmingham (Substance Misuse Service and 18-25 Adult ADHD Service)
14:45
Neurodevelopmental pathway – Introducing the MDT approach from Somerset, Mary Trotman, Clinical Nurse Specialist and Operational Manager. Clinical Leads for Children and Young People’s Neurodevelopmental Partnership. Somerset FT
15:45
Chair's closing remarks

Meet the Speakers

Victoria Bates
Victoria Bates
Clinical Lead for Specialist Nursing, Community Childrens Health Partnership Sirona Care and Health Bristol

Victoria has been a paediatric nurse for 19 years and has worked in the field of neurodevelopmental conditions for five.
Her current role is clinical lead for specialist nursing covering 3 local authorities. Victoria leads an autism assessment nursing team who are part of a wider autism assessment service. She also leads a specialist neurodevelopmental team who are part of the community paediatric service.
Victoria participates in the clinical triage, assessment and diagnosis of ADHD and ASD, and provides ongoing medication management of ADHD as a non-medial prescriber.

Kirk Anderson
Kirk Anderson
Deputy Team Manager & Children’s Community Learning Disability Nurse, Swindon Community CAMHS

Kirk is a Learning Disability Nurse, who qualified in 1995. He works mainly with children and has a particular interest in autism, as he and his two children are diagnosed autistic. More recently Kirk became involved in Swindon Community CAMHS neurodevelopmental pathway and has developed a post-diagnosis psychoeducation session based on his own research, information from autistic advocates and feedback from the children and families he works with. Like the majority of autistic adults, he prefers identity-first language, but doesn’t insist on it.

Joanna Kippax
Joanna Kippax
Sleep Practitioner and Nurse Prescriber, WyeSleep, Hereford

Joanna became registered in adult general nursing in 1986 after studying at The Middlesex Hospital, in London. She then completed her paediatric nurse training, studying at Westminster Children’s Hospital, London, before moving to Herefordshire.

After working on several paediatric in-patient units, she left her role as senior staff nurse, to work in Child and Adolescent Mental Health Services for 10 years as the prescribing ADHD nurse specialist. This is where Joanna’s interest in sleep began.

In 2017, Joanna left the NHS to complete further training in sleep and the treatment of sleep disorders at Oxford University, Southampton University and Northumbria University, before setting up an independent sleep health service, WyeSleep, in Hereford in 2019.

Today Joanna supports clients with insomnia, delivering sleep workshops to a range of businesses and charities, whilst working to spread the message of the importance of sleep for physical and mental health. She is one of the co-founders of British Sleep Pharmacy Services (BSPS), a charity aimed at supporting community pharmacists to improve access to sleep services to the public.

You can connect with Joanna through WyeSleep on LinkedIn, Twitter, Facebook and Instagram, or email wyesleep@gmail.com
www.wyesleep.co.uk

Louise Bull-Tyagi
Louise Bull-Tyagi
Lead Nurse for Learning Disability and DICE / NMP lead for FTB, Birmingham Women’s and Children’s NHS Foundation Trust

Louise Bull-Tyagi is a senior learning disability nurse working with children and young people with moderate to profound learning disabilities in Birmingham. Often these children and young people have a concurrent diagnosis of ASD. Louise is a non-medical prescriber and is currently completing her Advanced Clinical Practice MSc.

Mary Trotman
Mary Trotman
Children's Nursing Service and Operational Manager. Clinical Lead for Children and Young People’s Neurodevelopmental Partnership

Mary Trotman is a Children’s Nurse from Somerset. Her current role is Operational Manager for the Children and Young Persons (CYP) Neurodevelopmental Partnership. The Children and Young People’s Neurodevelopmental Partnership (CYPNP) has been commissioned to offer Neurodevelopmental assessments to children and young people aged 4-17 living in the Somerset area, as well as post diagnostic support for those diagnosed with ADHD. Mary qualified as a Children’s Nurse in 2001 and has worked for both NHS and Private industry over the last 21 years. During her time working in the NHS, she has worked with CYP who have complex or palliative care needs. In the private sector Mary had Occupational Health, Employee Assistance and Wellbeing roles that supported companies in looking after their workforce.

Mike Jenkins
Mike Jenkins
NMP Advanced Nurse Practitioner Forward Thinking Birmingham (Substance Misuse Service and 18-25 Adult ADHD Service)

Mike is the proud parent of neuro-diverse children, now adults. He qualified as an RMN in 1988, found CAMHS in 1990 and has stayed for the last 33 years, 20 of those years working in Youth Offending and 4 years in Substance Misuse. Mike became an NMP in 2014. he was recognised as an ANP in 2019 for his diagnostic and prescribing expertise. As you will be aware prevalence of neurodiversity is high in these populations. Mike is now moving to work solely in the adult ADHD field.

What will the webinar cover?

Key learning objectives

  • To understand the benefits of psychoeducation for children with autism
  • To get better understanding of how neurodiverse and adolescent patients sleep and what are the challenges they are facing in their sleep
  • To highlight the challenges of managing sleep in children with ASD and provide management strategies to improve outcomes
  • To explore the findings of a single neurodevelopmental pathway for ASD or ADHD
  • To explore the expert patient, core concepts and the nursing approach to ADHD diagnosis and treatment

Suggested Prereading

FOR HEALTHCARE PROFESSIONALS
Insomnia in paediatric ASD
An interactive eLearning module for healthcare professionals exploring why insomnia in paediatric ASD is a priority, the importance of sleep and how to achieve positive outcomes.
FOR HEALTHCARE PROFESSIONALS
4 Reasons to Stop Prescribing Liquid Melatonin for Children
There is a general acceptance of the benefits of solid dosage forms over liquid dosage forms for stability, dosing, and administration issues1. This booklet provides healthcare professionals with a concise summary of the drawbacks of prescribing liquid melatonin in children, with the support of clinical data.
1. European Medicines Agency, Guideline on pharmaceutical development of medicines for paediatric use, 2013. (Accessed November 2022)